The "Ending the Diagnostic Odyssey Act of 2019"

By Kevin E. Noonan — On January 6, 2020, a bi-partisan coalition of Senators, including Senator Collins (R-ME), Doug Jones (D-AL), Martha McSally (R-AZ), and Bob Menendez (D-NJ), introduced the “Ending the Diagnostic Odyssey Act of 2019” to permit states to use Medicaid funding for whole genome sequencing (WGS) analysis in children having certain rate diseases. The bill is a counterpart of H.R. 4144, introduced by Rep. Scott Peters (CA-52), joined by Rep. Shimkus and Mr. Vargas, on August 2, 2019. The stated purpose of the bill is “[t]o enable States to better provide access to whole genome sequencing clinical…

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